Million Dollar Bike Ride
June 13th, 2026
As part of the Million Dollar Bike Ride, the Loving Loic Foundation is proud to ride as the PKAN team supporting the NBIA Disorders Association, the global organization dedicated to advancing research and support for all NBIA disorders.
To achieve this, the Loving Loic Foundation is working to:
Raise the remaining funding needed to complete pre-clinical development and launch clinical trials
Strengthen partnerships between families, researchers, clinicians, and donors to accelerate progress
Increase awareness of PKAN and rare diseases to drive advocacy, collaboration, and support
Every dollar raised through events like the Million Dollar Bike Ride helps bring this life-saving therapy closer to reality.
At the Loving Loic Foundation, we believe no child’s life is too rare to matter.
Together, we are turning heartbreak into hope—and hope into action—for Loic and for children around the world living with PKAN.